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Joachim Zuther, Lymphedema Specialist. Read more

Lipedema – Video and Information

 

I would like to share with you an excellent video covering Lipedema.

lipedema5Lipedema is a painful fat disorder and if left untreated can cause multiple secondary health problems, to include mobility issues and Lymphedema.  The quality of life, emotionally and physically, for individuals affected by Lipedema is often decreased due to the fact that the condition is typically dismissed as simple obesity by clinicians unfamiliar with the symptoms.  Many women are affected by this disorder, often without knowing why their legs and hips are growing bigger with lumpy, painful fat.

This short video on Lipedema (Lipoedema in the UK) covers the causes of this disorder, the effects of Lipedema on the lymphatic system and current treatment options.  It includes patients,  researchers  and medical personnel who are on the leading edge of creating awareness and treatment options.

Watch this video by clicking here

Another good video from the Lymphatic Education and Research Network on Lipedema: Click here to view

More articles:
A closer look at Lipedema and it’s effects on the lymphatic system

Differences between Lipedema and Lymphedema

You can also go to  Lipedema-simplified  for more information.

Click here for a PDF Version of this Article

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8 comments to Lipedema – Video and Information

  • Angie Roberts

    Can this occur unilaterally in an arm after an injury???? THanks!

  • chaz ward

    I don’t know about lipedema but lymphedema is somewhat common after surgery or injury in the arms. especially in women after breast cancer surgery i have lymphedema and what i told you came strait from my dr’s mouth

  • Renata Roos

    Thank you for a excellent video on lipedema. I suffer from this condition for 36 years.. I am a Neuroflexologist and can use this information to understand myself and my patients better.
    Kindest regards
    Renata

  • Anita Hillis

    I had no idea what Lipedema was until I read this article. I suffer from Hereditary Intractable Primary Lymphedema with chronic cellulitis in bilateral legs. I have never battled anything this bad in my life. I have severe bouts of depression when my limbs are swollen so bad which is pretty much all the time now. I can’t afford the high co-pays to see a Lymphedema specialist. Health insurance does not cover any garments. So we are pretty much left on our own to figure this out. I use farrow wraps but they are wearing out and slide down on my legs. There has to be a better way of doing this?
    Any suggestions for someone like me who lives on disability and can’t afford the things I need to keep the swelling down? Feeling hopeless…..
    Thank you for all your information on this dreadful disease.

    • Julie

      Anita I’m sorry to hear that you are having such a difficult time managing your lymphedema. I just wanted to make a couple comments or suggestions to hopefully give you some ideas that could be helpful to you. When you say lymphedema specialist, are you talking about an OT or PT? I am an OT and a certified lymphedema therapist. Many lymphedema therapists are OT’s or PT’s. Do outpatient therapy services require a high co-pay on your insurance? If not, seek us out. The treatment in a clinic will not be life long. Our goal is to reduce the limb as much as possible and teach you an appropriate home program to do daily in order to mangae the lymphedema. You need an order from a medical provider for our services. With your cellulitis do you have wounds? Many times insurance will pay for compression items for management of wounds so that would be the ideal time to seek treatment. Finally, I would recommend that you contact compression/pump companies. Many of them out there are privately owned and may work with you on payment options and I have found that their customer service is out of this world. Although, the customer service through the larger companies such as Juzo, Mediven, and Jobst has always been amazing as well. I know that Solaris and Jovipak were started by therapists and are smaller companies. I would also recommend contacting Tactile Medical to discuss the Flexitouch lymphedema pump. They have a patient assistance program that you may qualify for, and I have really had great experiences working with this company. In general, these companies really understand the importance of managing lymphedema and the difficulties that people have in affording the treatment. I wish you all the best on your journey.

  • Sahar

    Hello everyone,
    Does jumping in trampoline helps lipedema?
    Thanks
    Sahar

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