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Joachim Zuther, Lymphedema Specialist. Read more
Lohmann Rauscher

Tactile Medical

Update on the Lymphedema Diagnosis and Treatment Cost Saving Act of 2010


I would like to share with you an update from Heather Ferguson on the recent stakeholder’s meeting in Washington, DC regarding the latest version of  the “Lymphedema Diagnosis and Treatment Cost Saving Act of 2010” (former Bill HR 4662).
I am glad that the meeting was extremely productive and that a high level of consensus has been reached between the stakeholders. For more information, please go to the Lymphedema Treatment Act web site at

Here is Heather’s message:

On May 25th a stakeholder’s meeting took place at the DC office of Congressman Larry Kissell, our bill sponsor, to review a recently completed draft of our bill.  Since the start of the new Congress in January, his office has been working with the professional bill writers of Legislative Counsel to revise last year’s bill based on stakeholder input.
The organizations represented were: the American Cancer Society, American Physical Therapy Association, American Occupational Therapy Association, Oncology Nursing Society, National Breast Cancer Coalition, Lymphatic Research Foundation, National Lymphedema Network, Lymphology Association of North America, American Lymphedema Framework Project, North American Lymphedema Education Association and patient advocates from the Lymphedema Advocacy Group.
The draft will now be sent back to the bill writers for a final round of revision.  There was excellent consensus amongst the stakeholders and Congressman Kissell plans to reintroduce the bill no later than July 1st.  Although this process has been more time consuming than expected, the result will be a much stronger bill! 
Heather Ferguson

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2 comments to Update on the Lymphedema Diagnosis and Treatment Cost Saving Act of 2010

  • Pat

    Suggest you include and specifically mention coverage for CIBP and RIBP [chemo or radiation induced brachial plexopathy] which are difficult to diagnose sometimes seen with Lymphedema. My diagnosis was by elimination and therefore quite expensive. I’m told there is no cure or effective treatment. I have RIBP without Lymphedema, I basically have paralysis and excruciating pain in my right hand to elbow. I expect I will need PT, chronic pain medications and close follow-up for some time in the future. I’m age 61 and will qualify for Medicare soon.

  • Pat

    Include CIBP and RIBP often seen with Lymphedemia.